SUPPORT FOR AUTISTIC YOUTH 2-21 AND THEIR FAMILIES

1. Autism

1.1. Problems faced by Autistic Youth ages 2-21 in the educational setting

1.1.1. Padden, C., & James, J. E. (2017). Stress among parents of children with and without autism spectrum disorder: A comparison involving physiological indicators and parent self-reports. Journal of Developmental and Physical Disabilities, 29(4), 567–586. https://doi.org/10.1007/s10882-017-9547-z

1.1.2. Hsiao, Y.-J. (2017). Parental stress in families of children with disabilities. Intervention in School and Clinic, 53(4), 201–205. https://doi.org/10.1177/1053451217712956

1.1.3. Galpin, J., Barratt, P., Ashcroft, E., Greathead, S., Kenny, L., & Pellicano, E. (2017). ‘The dots just don’t join up’: Understanding the support needs of families of children on the autism spectrum. Autism, 22(5), 571–584. https://doi.org/10.1177/1362361316687989

1.2. Growing population of autistic youth

1.2.1. Include data from Maryland Coalition of Families on traditional family support as well as empowerment outcomes of "autism specific"families receiving peer support that is not diagnostic specific.

1.2.1.1. Maryland Coalition of Families. (2020). Family peer support outcomes [Unpublished raw data]

1.2.1.2. SW Creatives. (2017). Our impact. Mdcoalition.Org. Our Impact

2. Current Services Offered to parents and those that work with them

2.1. Sanchez, M. (2010). The effects of a formal empowerment and education program on parent’s empowerment and involvement in their child’s education (Publication no. 10830043) [Doctoral Dissertation, Boston College]. ProQuest Dissertations and Thesis Global.

2.2. Nguyen, Q. T. (1346). An evaluation of a parent training program. (Publication no. 3564231) [Doctoral Dissertation, Capella University]. ProQuest Dissertations and Thesis Global.

2.3. Samadi, S. A., McConkey, R., & Kelly, G. (2012). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism, 17(1), 27–43. https://doi.org/10.1177/1362361311435156

3. Gaps in services/services that are not offered

3.1. Murray, M., Ackerman-Spain, K., Williams, E., & Ryley, A. (n.d.). Knowledge is power: Empowering the autism community through parent-professional training. https://files.eric.ed.gov/fulltext/EJ932198.pdf

3.2. Rodriguez, J., Olin, S. S., Hoagwood, K. E., Shen, S., Burton, G., Radigan, M., & Jensen, P. S. (2010). The development and evaluation of a parent empowerment program for family peer advocates. Journal of Child and Family Studies, 20(4), 397–405. https://doi.org/10.1007/s10826-010-9405-4