Dilated Cardiomyopathy in children and it's effect on the life of the child and family

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Dilated Cardiomyopathy in children and it's effect on the life of the child and family by Mind Map: Dilated Cardiomyopathy in children and it's effect on the life of the child and family

1. Education and Socialisation

1.1. Family Education Re- Disease process, therapies etc

1.1.1. Management of CHF at home

1.1.2. How to take medications

1.1.3. How to prevent exacerbation

1.1.4. activity restriction

1.1.5. diet

1.1.6. fluid restriction

1.1.7. Use written material

1.2. Education for the child

1.2.1. Lots of missed school

1.2.1.1. Social Gaps

1.2.1.2. Education Gaps

1.3. Sports and Leisure

1.3.1. Limited due to poor exercise tolerance and frequent hospitalisation

2. Financial Ramifications

2.1. Repeated illness and hospitalisation mean that only one parent can reliably work

2.2. When ill child is hospitalised, family must still manage other children, meaning missed time for the working parent

2.2.1. Increased costs for childcare

2.3. Travel for appointments, hospitalisation, treatments

2.3.1. Food Costs

2.3.2. Fuel Costs

2.3.3. Parking

2.3.4. Laundry

2.3.5. Accomodation

3. Mental health/psychological

3.1. Possible Depression/Anxiety

3.1.1. allow child to discuss feelings

3.1.2. Seek therapy for child and family

3.2. Frustration with limitations

3.2.1. Include child in decisions

3.3. Poor compliance with medications due to embarassment

3.4. Palliative Care involvement

3.4.1. Pediatric Palliative Care services can connect families with support services

3.4.2. Possible end of life care of family and child

4. Impact on well siblings

4.1. lots of strain when sibling is ill or in hospital

4.1.1. Mum/Dad away

4.1.2. Extra child-care/after school care

4.1.3. More 'quick-food'

4.2. stressed parents

4.3. financial stress

4.4. Parents don't want to be out with vulnerable child so decreased social involvement

4.5. Parents always busy trying to make money when sibling is well

4.6. Own stress over sick sibling

5. Sarah Taylor, Student No. 276102

5.1. Concept Map, Assignment 3a, Dilated Cardiomyopathy has long reaching effects on every aspect of a child's life

6. Possible others in family with illness as frequent genetic cause

6.1. Increased risk in indigenous children

6.2. Approx 14.7% of Australian children with DCM have a parent with Cardiomyopathy

6.3. Over 30 different Genes can be responsible