Epilepsy Canada
by Amanda De Marchi
1. Services for Ontario Students and Families:
2. Accessability
3. Other info and Interesting Facts:
4. - every day, on average, 42 Canadians learn that they have epilepsy
5. - in about 50% of cases of childhood epilepsy, seizures disappear completely
6. - in 50 - 60% of cases, the cause is unknown
7. - support groups for children and parents
8. - training for teachers
9. - free brochures to download and share
10. - educational resources, like readers theatre and education packs
11. Many people with epilepsy need medication to lessen seizure activity. If children have OHIP, they are eligible for the Ontario Drug Benefit Program and Trillium Drug Program (when medication costs are high relative to income).
12. - there is an app called SeizureTracker to help families track seizure activity
13. There are many different support services in Ontario. Some include the University Health Network epilepsy clinic at Toronto Western Hospital, McMaster Children's Hospital, the Children's Hospital of Ontario in Ottawa and Sudbury Regional Hospital - they all have epilepsy clinics or additional services for children and families with epilepsy.
14. Vision: It undertakes education and awareness activities to build understanding, acceptance and hope for those effected by epileptic seizures or SUDEP (Sudden Unexplained Death from Epilepsy).
15. Goals:
16. Addressing Awareness - Epilepsy Canada showcases people who are examples of living successfully with epilepsy. They raise awareness in schools and at events.
17. 1. To fund the best epilepsy research in Canada;
18. 2. To increase public and professional awareness of epilepsy as a universal, treatable brain disorder;
19. 3. To change attitudes, dispel myths and raise epilepsy to a new plane of acceptability in the public domain;
20. 4. To promote public and professional education about epilepsy;
21. 5. To identify the needs of people with epilepsy on a national basis
22. Katie's Run started in 2012 and has raised over $64 000 for research in Canada.
23. Resources: Epilepsy Ontario http://epilepsyontario.org/ and Epilepsy Canada http://www.epilepsy.ca/