1. Framework
1.1. Double empathy theory
1.1.1. Research this more
1.2. What does the current research on non-autistic parents of autistic children say? Look for literature reviews.
2. Research site
2.1. Collaborate with IRCA in Bloomington?
2.1.1. Is this organization ableist?
2.2. Interviews via phone/videoconferencing or in-person, depending on preference and location
2.3. Database
2.4. Research team
2.4.1. Should we include non-autiistic people for a different perspective?
3. Materials
3.1. 1 on 1 interviews using IPA
3.1.1. Need to do more research on how to implement this
3.1.2. Initial research questions
3.1.2.1. What are the experiences of autistic parents communicating with their autistic children? How do these experiences vary from allistic parents?
3.1.2.2. What are the experiences of autistic parents communicating with allistic medical service providers (such as doctors and therapists) about their autistic children? How do these experiences vary from allistic parents?
3.1.2.3. What are the experiences of autistic parents communicating with allistic primary and secondary school teachers and administrators about their autistic children? How do these experiences vary from allistic parents of autistic children?
3.1.2.4. What are the experiences of autistic parents managing competing sensory needs between themselves and their autistic children?
4. Study population
4.1. How do we define autistic?
4.1.1. Is a formal diagnosis required? For the parent? For the child? Advantages and disadvantages?
4.1.1.1. Should we implement the Autism Spectrum Quotient as a screening tool? What could be problematic here?
4.2. Recruitment
4.2.1. Check with IRCA on access to mailing list/blog/etc.
4.2.2. Compensation
4.3. Partner information
4.3.1. Do we control the partner's autism status, if married?
4.3.2. Can we control for single-parenting stress?
4.4. Need diverse representation
4.4.1. Current studies are all verbal, White, married, educated, people of upper SES
4.4.1.1. Are there non-verbal autistic parents of autistic children? Where do we find them?
4.4.2. Majority of studies are of Mothers, excluding fathers and the non-binary population
4.4.2.1. Note that gender divergence is common in the autistic population. Could look at LGBTQ organizations for recruitment.
4.4.3. Age of parent diagnosis
4.4.3.1. Was the parent's diagnosis before or after their child's?
4.5. The autistic children
4.5.1. Do we limit the number of children the parent has?
4.5.2. Do we incorporate information on support needs of children (i.e. formal diagnosis levels 1, 2, or 3)