04 / 09 / 2014

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04 / 09 / 2014 by Mind Map: 04 / 09 / 2014

1. Tell 'em about you and /or your family.

1.1. 03 / 01 / 2014

1.1.1. The Charlie Foundation

1.1.1.1. Wanted:

1.1.1.1.1. We are trying to compile a list of summer camps, including sleep-away camps that are able to accommodate special needs, medical care and dietary restrictions such as the ketogenic diet. If you know of a camp, please share the name and location in the comments section. Please tell us about your experiences as well!

1.1.1.2. Link:

1.1.2. The Arc

1.1.2.1. Wanted:

1.1.2.1.1. The Board Development Committee of The Arc of the United States is conducting outreach to find potential nominees for the Board of Directors. We are inviting you to assist us in this process. Please take a moment to review The Arc’s 2014 Nominating Priorities in the Board Prospectus. If after you look over the priorities you identify people you know that would be a good fit for The Arc’s Board of Directors, please nominate them or invite them to nominate themselves.

1.1.2.2. Link:

1.1.3. Red Treehouse (Ohio)

1.1.3.1. Wanted:

1.1.3.1.1. Red Treehouse is asking for your help sharing information about events and activities in your community in order to spread the word to other parents, families and youth. We’ve made it easy to do so. You can add an event directly, or forward the information to [email protected] for posting.

1.1.3.2. Link:

1.2. 02 / 10 / 2014

1.2.1. Reaching For The Stars

1.2.1.1. Wanted:

1.2.1.1.1. In no time at all it will be March 25th - National Cerebral Palsy Awareness Day!! Have you started thinking about how you can mark this important occasion? Please let us know your ideas!

1.2.1.2. Link:

1.2.2. The Neil Squire Society (CA)

1.2.2.1. Wanted:

1.2.2.1.1. The Neil Squire Society would like to gain a greater understanding of the way people with disabilities handle their everyday banking and payment needs.

1.2.2.1.2. The study will contribute to a review of electronic payment services for people with disabilities. It will also help with figuring out what needs to happen to make sure that you have easy access to these services. The focus of this study is to look at the issues the technology might create for people with disabilities.

1.2.2.1.3. As part of this project we are seeking people with different disabilities who are willing to complete a short survey about the barriers they face when doing their banking and paying for items and services. We want to hear about any changes you would like to see in the way services are delivered. We also want to know what is working well for you right now with these services. The survey takes about 30 minutes to complete. The information can be provided anonymously and you can leave out any questions you wish. No personal financial details are asked for in this survey - it is only about your experiences and suggestions.

1.2.2.2. Link:

1.2.3. DIYAbility

1.2.3.1. Wanted:

1.2.3.1.1. DIYAbility is thinking of new assistive technology projects and initiatives. This will include kits to create your own DIY adaptations. What would you be interested in?

1.2.3.2. Link:

1.2.4. Presidential Commission for the Study of Bioethical Issues

1.2.4.1. Wanted:

1.2.4.1.1. We are requesting public comment on the ethical considerations of neuroscience research and the application of neuroscience research findings.

1.2.4.2. Link:

1.3. Previous five (5) volumes

1.3.1. 01 / 30 /2014

1.3.1.1. AbleRoad

1.3.1.1.1. Wanted:

1.3.1.1.2. Link:

1.3.1.2. CanChild

1.3.1.2.1. Wanted:

1.3.1.2.2. Link:

1.3.1.3. Differently Abled with Sarah Sweeney

1.3.1.3.1. Wanted:

1.3.1.3.2. Contact:

1.3.2. 01 / 16 / 2014

1.3.2.1. National Autism Association

1.3.2.1.1. Wanted:

1.3.2.1.2. Link:

1.3.3. 01 / 05 / 2014

1.3.3.1. FasterCures / Time Equals Lives campaign

1.3.3.1.1. Wanted:

1.3.3.1.2. Link:

1.3.4. 12 / 20 / 2013

1.3.4.1. The Arc

1.3.4.1.1. Wanted:

1.3.4.1.2. Link:

2. Start a chapter, group or committee.

2.1. Previous five (5) volumes

2.1.1. 01 / 16 / 2014

2.1.1.1. Reaching for the Stars

2.1.1.1.1. Wanted:

2.1.1.1.2. Contact:

2.1.2. 01 / 05 / 2014

2.1.2.1. Children's Hemiplegia and Stroke Association

2.1.2.1.1. Volunteer to be a Director or Co-Director for your state or community

2.1.2.1.2. Link:

3. Do a paid or unpaid internship.

3.1. 03 / 01 / 2014

3.1.1. UCP Central PA

3.1.1.1. Wanted:

3.1.1.1.1. UCP Central PA has unpaid internship opportunities for both undergraduate and graduate students available throughout the year.

3.1.1.1.2. Possible work areas:

3.1.1.1.3. Ideal candidates should have demonstrated strengths in written and verbal communication and the ability to juggle multiple projects and meet deadlines.

3.1.1.2. Link:

3.2. Previous five (5) volumes

3.2.1. 01 / 16 / 2014

3.2.1.1. American Association of People with Disabilities

3.2.1.1.1. Wanted:

3.2.1.1.2. Link:

3.2.2. 01 / 05 / 2014

3.2.2.1. Children's Neurobiological Solutions Foundation

3.2.2.1.1. Wanted:

3.2.2.1.2. Link:

3.2.3. 12 / 20 /2013

3.2.3.1. United Cerebral Palsy

3.2.3.1.1. Wanted:

3.2.3.1.2. Link:

4. Share your professional skills.

4.1. BrainFacts.org

4.1.1. Wanted:

4.1.1.1. Work with a member of the Society for Neuroscience near you to produce an educational video about the brain and it could appear on this page. Whether it’s an animation, song, or skit, share the wonders of science through the Brain Awareness Video Contest. Submit your video by June 12, 2014.

4.1.2. Link:

4.2. 03 / 01 / 2014

4.2.1. Epilepsy Foundation

4.2.1.1. Wanted:

4.2.1.1.1. Innovative ideas to help people with epilepsy and seizures. The Epilepsy Therapy Project, an initiative of the Epilepsy Foundation, is inviting entries that represent the most innovative new ideas in epilepsy treatment and care for its third annual Shark Tank Competition.

4.2.1.1.2. The deadline for submitting a Letter of Intent (LOI) is Friday, March 14, 2014.

4.2.1.2. Link:

4.2.2. The Dana Foundation

4.2.2.1. Wanted:

4.2.2.1.1. Get involved in Brain Awareness Week. [March 10-16] Consider creating your own “organization”—perhaps developing a BAW “Book Club” to read and discuss neuroscience related books during March, or screening the “Staying Sharp” DVD for a group of your friends.

4.2.2.2. Link:

4.2.3. Nationwide Children's Hospital

4.2.3.1. Wanted:

4.2.3.1.1. The Nationwide Children’s Hospital Child Development Center (CDC) in Westerville, Ohio recently completed an expansion and renovation project on clinic and treatment space. The project includes the addition of 7500 square feet of new space including a new and very large waiting area for families as well as exam and treatment space. The new space currently has 12 opportunities for Artists with autism to showcase their work.

4.2.3.2. Contact:

4.2.3.2.1. Questions can be directed to Amy Hess at: [email protected]

4.3. Previous five (5) volumes

4.3.1. 02 / 10 / 2014

4.3.1.1. Life Labs

4.3.1.1.1. Wanted:

4.3.1.1.2. Link:

4.3.2. 01 / 30 /2014

4.3.2.1. World CP Day

4.3.2.1.1. Wanted:

4.3.2.1.2. Link:

4.3.2.2. Cerebral Palsy International Sports and Recreation Association

4.3.2.2.1. Wanted:

4.3.2.2.2. Link:

4.3.3. 01 / 16 / 2014

4.3.3.1. National Alliance for Caregiving

4.3.3.1.1. Wanted:

4.3.3.1.2. Link:

4.3.3.2. Pathways.org

4.3.3.2.1. Wanted:

4.3.3.2.2. Link:

4.3.4. 01 / 05 / 2014

4.3.4.1. RespectAbilityUSA.org

4.3.4.1.1. Wanted:

4.3.4.1.2. Contact:

4.3.5. 12 / 20 / 2013

4.3.5.1. Love That Max: Special Needs Blog

4.3.5.1.1. Wanted:

4.3.5.1.2. Link:

4.3.5.2. American Academy for Cerebral Palsy and Developmental Medicine

4.3.5.2.1. Wanted:

4.3.5.2.2. See AACPDM'S 12/11 post. Link:

5. Contribute to a collaborative community.

5.1. ABILITY Magazine

5.1.1. Wanted:

5.1.1.1. We need your help subtitling and translating our videos! We’ve partnered with Amara, a service that allows translations to be completed collaboratively! Joining the project is easy and fun.

5.1.2. Link:

5.2. Previous five (5) volumes

5.2.1. 01 / 16 / 2014

5.2.1.1. Friendship Circle of Michigan

5.2.1.1.1. Wanted:

5.2.1.1.2. Link:

5.2.2. 01 / 05 / 2014

5.2.2.1. Mommies of Miracles

5.2.2.1.1. Wanted:

5.2.2.1.2. Link:

6. Get involved in the political process.

6.1. Research!America

6.1.1. Wanted:

6.1.1.1. Tell the House to Reject the House Majority’s Budget Plan (proposes drastic cuts to the funding used to support medical progress among other national priorities)

6.1.2. Link:

6.2. 03 / 01 / 2014

6.2.1. Reaching For The Stars

6.2.1.1. Wanted:

6.2.1.1.1. Congressional letter writing effort. Continuing our work to push for specific federal funding for CP research at the CDC and NIH. If you have any interest in this topic and would like to help (and maybe make a trip to DC with us), please message us.

6.2.1.2. Link:

6.2.2. National Patient Advocate Foundation

6.2.2.1. Wanted:

6.2.2.1.1. If interested in signing on as a volunteer for National Patient Advocate Foundation on federal/state policy, please contact us via link below.

6.2.2.2. Link:

6.3. Previous four (4) volumes

6.3.1. 02 / 10 / 2014

6.3.1.1. Access Living

6.3.1.1.1. Wanted:

6.3.1.1.2. Link:

6.3.1.2. Reaching For The Stars

6.3.1.2.1. Wanted:

6.3.1.2.2. Link:

6.3.2. 01 / 16 / 2014

6.3.2.1. The Arc

6.3.2.1.1. Wanted:

6.3.2.1.2. Link:

6.3.3. 01 / 05 / 2014

6.3.3.1. Research!America

6.3.3.1.1. Wanted:

6.3.3.1.2. Link:

6.3.4. 12 / 20 / 2013

6.3.4.1. US International Council on Disabilities

6.3.4.1.1. Wanted:

6.3.4.1.2. Link: